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Thola izindlela ezintsha ndawonye:

Uhlelo lokusebenza lokuqala lwenkundla yezokuxhumana lwabantu abanezifo ezingamahlalakhona nezingavamile noma abakhubazekile kanye nochwepheshe.

I-unrare.me iyindawo yokwabelana ngolwazi lokuhlangenwe nakho kanye nokuthola izindlela ezintsha ndawonye. Abantu abanezifo ezingavamile nezingamahlalakhona bangahlangana lapha
Shintshanisa abakhubazekile kanye nochwepheshe abavela kunethiwekhi yemisebenzi yezempilo ngendlela ehlukene.

· ukushintshanisa ulwazi
· ukweseka omunye nomunye
· ukuthola izixazululo ndawonye - zezinselele zansuku zonke
· ukuhlinzeka ngolwazi kanye nokubona amathuba amasha

i-unrare.me yasungulwa ngokubambisana ne-Bonn Center for Rare Diseases, i-Hannover Medical School kanye ne-Children's Network e.V. Lo msebenzi wenziwe waba nokwenzeka ngoxhaso lwezimali oluvela ku-Federal Ministry of Health ngokusekelwe esinqumweni se-Bundestag yaseJalimane.